Rowman and Littlefield International

Ethics and Governance of Public Health Information

By Stephen Holland

1 Review

This book analyses current ethical issues in public health research.

Hardback ISBN: 9781786600554 Release date: Oct 2019
£80.00 €112.00 $120.00
Paperback ISBN: 9781786600561 Release date: Oct 2019
£24.95 €34.95 $39.95
Ebook ISBN: 9781786600578 Release date: Oct 2019
£24.95 €34.95 $37.95

Pages: 170

Textbook

The ethics and governance of health information is a major contemporary problem. The central dilemma is between the social utility gained by exploiting health data for public health purposes, and privacy concerns about collecting and using personal information. There is a discernible tendency in our digital age to prioritise privacy protection over social utility, which results in increasingly restrictive regulation of data, including health data. This book defends public health from this distinctive threat. The book starts with a comprehensive taxonomy of public health information – including a novel take on the notoriously vexed ‘research-practice’ distinction – and a discussion of the best governance arrangements for all public health information. Privacy is clearly central to this, so the concept of privacy is analysed to clarify the sort of privacy concerns relevant to public health information. This reveals that risks and harms associated with identifiable data are overstated – for example, when all public health data are assumed to be equally dangerous. Conversely, resources to manage privacy concerns about public health information are systematically understated. For one thing, public health should continue its traditional reliance on anonymization to protect individual privacy, despite increasingly sophisticated re-identification techniques. Also, the requirement to gain consent from individuals to use their information is offset by a duty to provide personal data for the sake of public health. In the same vein, the book ends with a discussion of trust, arguing that there are underemployed ways of increasing public trust in the institutions responsible for managing public health data.

Preface

Introduction

Chapter 1 – Public Health Information and the Research-Practice Distinction

Chapter 2 – Governance, Research Exceptionalism and Proportionate Review

Chapter 3 – Privacy

Chapter 4 – Anonymity and Re-Identification

Chapter 5 – Identifiable Data

Chapter 6 – Consent

Chapter 7 – Trust and Trustworthiness

Conclusion

Stephen Holland is Professor of Philosophy and Health Science at the University of York, UK. He is the author of Public Health Ethics (2nd edn. 2014) and Chair of Public Health England’s Research Governance Review Group.

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1 Review

This is a fascinating book on a timely topic. Holland provides a deft philosophical guide to a wide range of complex issues in the collection, storage and use of public health data. His overarching argument, that concerns about informational privacy have gone too far, is well-developed; researchers, regulators and ethicists should all reflect on it.

Stephen John, Hatton Lecturer in the Philosophy of Public Health, University of Oxford

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